Skip to main content

Surgery and Sunitinib and fun with s's

Amid all the fun headlines happening out there, we thought we should update you good folks with what we do know.

Dan's tumor and clot are pretty much unresponsive to the chemotherapy medication Sunitinib. The doctors can see no shrinkage. The veins where the tumor is most prevalent are considered completely occluded - which means blocked. Periphery veins are taking over the job of supplying blood where it needs to go.

Which is why he's still walking and breathing, but also why he's suffering very painful leg spasms almost every morning, and why his potassium levels are too high.

Surgery is expected to take early November. This surgery will be done by a vascular surgeon at RCH, and will be nearly as major as his first. The point of this surgery will be "debulking." The doctor will go in and attempt to remove what he can of the tumor and clot. But since it is obvious he will not be getting 100% of the tumor, it's considered "debulking" since he'll attempt to get what he easily, and safely, can cut out.

Depending on the tumor, depending on the veins, this could mean a little, or it could mean a lot.

We won't know until the surgery.

Dan will be out for roughly three months following surgery, and Maggie has applied for some help from the provincial government and extended leave from her office so she can be home to help him while he recuperates. After surgery, Dan will be back on chemo meds, and hopefully with the debulking, we might see a better response to the medicine. Again: we won't know for sure until scans following the surgery.

In the mean time ... thanks for being there for us.

And fuck you, cancer.


Comments

Popular posts from this blog

Spinal Surgery

...play it again, Sam. On Saturday, Maggie turned 40 and Ayla turned 9. On Wednesday, Elyse makes a gingerbread house at school and on Thursday, Ayla does. Friday is crazy hair day! And also on Friday, Dan will have spinal surgery to de-bulk the tumor that has grown in his lower vertebrae.  Can you guess who's not feeling the spirit of the season? Debilitating pain aside ... I have no witty follow up to that. Dan's been in pain for several months, and being Dan, is working through it. Hopefully the surgery will help, but like all the others, it's not an answer to his cancer.  Dan will be in hospital for a few days before returning home, where he's expected to have a 12 to 16 week recuperation. Reach out and say hello, send your thoughts and love, and I do believe someone mentioned puppies? The girls want a kitty. I'm partial to gold fish. Thanks for all your support, friends and family, especially my mom Terri who is here as emotional and kid support and as primo tr...

2023 Update

 ... There hadn't been an update back in December, so here it is now: surgery for the tumor in Dan's spine was delayed/cancelled the day before it was to happen, by choice. The tumor is not growing, nor is it shrinking. It is considered stable, due to the increase in dosage of medicine that Dan is taking. Since it is stable, the surgeon doesn't want to do surgery yet. The hope it that it will start to shrink. So attention turned to dealing with the pain the tumor was causing. Today, Dan received a nerve-blocker shot, steroid based, in the nerve that is being affected by the tumor. Within a few days it should begin helping with the pain. We hope to see him sleeping better, and up and moving a little better. He'll likely still limp and need the cane to get around, but if the pain is mitigated a bit, then we'll be happy.

Yeet the Deets

Enough vague booking, here's the details. Dan's surgery tomorrow is postponed, until at least January 2019. Dan will have to be fully healed and back on blood thinners and stable before the vascular surgeon will want to go ahead with the surgery.  He'll be home Friday, hopefully, and his only job for the next two months is to recuperate in peace and quiet (if Maggie has any say in the matter). Hematoma's take 1-4 weeks to heal, and he's likely on the longer end due to the severity of his. He's currently unable to stand or walk for any length of time. Hematoma's need rest, elevation, icing and compression to heal, so we'll be busy with Netflix and chill with feet raised. This is unfortunate news, and despite this complication and the forewarning of a likely postponing, we weren't ready for a delayed surgery date so far in the future. It means both Maggie and Dan are off of work for longer than planned, creating a bit more stress in the ...