#GreenLipstickChallenge #KidneyCancer

June 22 was the first World Kidney Cancer Awareness day and everyone was encouraged to take a selfie with green lipstick and tag it #GreenLiptstickChallenge and #KidneyCancer to raise awareness. The main website did a Q and A too, but we ended up being too busy that day to really participate.

Whitney brought the girls to the hospital again and this visit went better and lasted longer. Ayla was such a big girl and so brave, and she wasn't quite so scared of all the doctors and patients this time around. She had special green lipstick to put on everyone and followed that up with painting Daddy's nails green. And she had a special cupcake just to share with Daddy that she'd been hanging on to as well. AND - a replacement Father's Day coffee cup, the first having unfortunately broken on their way in to the hospital last Sunday.

We had the girls meet us outside in the Serenity Garden, where Dan could get sunshine and fresh air. The visit did him good.

Almost as good as the special sponge bath he received the day before from a good friend of Maggie's, who is now a close friend of Dan's. 😘

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Spinal Surgery

...play it again, Sam. On Saturday, Maggie turned 40 and Ayla turned 9. On Wednesday, Elyse makes a gingerbread house at school and on Thursday, Ayla does. Friday is crazy hair day! And also on Friday, Dan will have spinal surgery to de-bulk the tumor that has grown in his lower vertebrae. Can you guess who's not feeling the spirit of the season? Debilitating pain aside ... I have no witty follow up to that. Dan's been in pain for several months, and being Dan, is working through it. Hopefully the surgery will help, but like all the others, it's not an answer to his cancer. Dan will be in hospital for a few days before returning home, where he's expected to have a 12 to 16 week recuperation. Reach out and say hello, send your thoughts and love, and I do believe someone mentioned puppies? The girls want a kitty. I'm partial to gold fish. Thanks for all your support, friends and family, especially my mom Terri who is here as emotional and kid support and as primo tr...

2023 Update

... There hadn't been an update back in December, so here it is now: surgery for the tumor in Dan's spine was delayed/cancelled the day before it was to happen, by choice. The tumor is not growing, nor is it shrinking. It is considered stable, due to the increase in dosage of medicine that Dan is taking. Since it is stable, the surgeon doesn't want to do surgery yet. The hope it that it will start to shrink. So attention turned to dealing with the pain the tumor was causing. Today, Dan received a nerve-blocker shot, steroid based, in the nerve that is being affected by the tumor. Within a few days it should begin helping with the pain. We hope to see him sleeping better, and up and moving a little better. He'll likely still limp and need the cane to get around, but if the pain is mitigated a bit, then we'll be happy.

Yeet the Deets

Enough vague booking, here's the details. Dan's surgery tomorrow is postponed, until at least January 2019. Dan will have to be fully healed and back on blood thinners and stable before the vascular surgeon will want to go ahead with the surgery. He'll be home Friday, hopefully, and his only job for the next two months is to recuperate in peace and quiet (if Maggie has any say in the matter). Hematoma's take 1-4 weeks to heal, and he's likely on the longer end due to the severity of his. He's currently unable to stand or walk for any length of time. Hematoma's need rest, elevation, icing and compression to heal, so we'll be busy with Netflix and chill with feet raised. This is unfortunate news, and despite this complication and the forewarning of a likely postponing, we weren't ready for a delayed surgery date so far in the future. It means both Maggie and Dan are off of work for longer than planned, creating a bit more stress in the ...

Dumo Cell Carcinoma

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